Improve Patient Communication – Enhance Health Outcomes
ClinicalKey training March 17th 2025
GENERAL TRAINING – MARCH 17TH (15:00hrs UK and Ireland)
If you have any of your users who you would like to invite to use ClinicalKey more or if you would like to have a ClinicalKey refresher training, feel free to join and promote. More information about the training and registration page here: https://events.teams.microsoft.com/event/ceb16c91-2a7c-44ec-b63d-b770a7681c0f@9274ee3f-9425-4109-a27f-9fb15c10675d
March 17th to 23rd – Nutrition and Hydration Week
As Nutrition & Hydration Week begins, we work to keep in mind the importance of good nutrition and hydration in the overall well-being of patients. The cornerstone of good health is a balanced nutritional plan, and with ClinicalKey by your side, you will be able to address the unique nutrition and hydration needs of your patients with evidence-based knowledge.
Familiarise yourself with ClinicalKey and the thousands of resources and clinical overviews available to support you today: nutrition – ClinicalKey Search
Ovarian Cancer Awareness Month
March 2025
According to the charity, Ovarian Cancer
Action, approximately 7,500 women are diagnosed with ovarian cancer in the UK
each year, with only 3 in 10 women living beyond 10 years after diagnosis. In light of this, the charity launched
Ovarian Cancer Awareness Month, which takes place in March each year. The campaign aims to raise awareness of
ovarian cancer symptoms and statistics.
RELATED LIBRARY
RESOURCES
The Health Libraries,
both at the Royal Stoke and County Hospitals, offer numerous resources related
to this topic. In the lists below you’ll find a small selection of items from
our collection. To locate these items, simply go to our online catalogue or ask
at the counter. This
document covers the following resources – books, journals, journal articles and patient information.
·
Clark’s Essential Guide to Mammography; Borrelli, Claire; Mercer, Claire; Whitley, A. Stewart; 2024 (CRC
Press) – [only available as a Keele e-book]
·
Oxford Handbook of Obstetrics and Gynaecology; Collins, Sally; 2023 (Oxford University Press) – [available to loan
from the Health Library at County or available as an NHS e-book]
·
Ovarian cancer: methods and protocols; Kreeger, Pamela K; 2022 (Springer US) – [only available as a Keele
e-book]
·
Tumor Angiogenesis Assays: Methods and Protocols; Ribatti, Domenico; Ribatti, Domenico; 2022 (Springer US); 2nd
edition – [only available as a Keele e-book]
·
Histopathology Reporting: Guidelines for Surgical Cancer; Boyle, David P; Allen, Derek C; 2020 (Springer); 4th edition
·
Essential obstetrics and gynaecology; Symonds, Ian M; Arulkumaran, Sabaratnam; 2019 (Elsevier); 6th
edition
·
Principles of Gynecologic Oncology Surgery; Ramirez, Pedro; 2025 (Elsevier) – [only
available as an e-book for UHNM users via Clinical Key with an OpenAthens
password]
·
Diagnosis
and Treatment of Rare Gynecologic Cancers;
Frumovitz, Michael; 2023 (Elsevier) - [only available as an e-book for UHNM
users via Clinical Key with an OpenAthens password]
JOURNALS
·
Gynecologic
oncology reports; (Elsevier) – [available as an Open Access
e-journal from 2014 onwards]
·
Journal of
obstetrics, gynecology and cancer research JOGCR; (Tehran
Farname Inc) – [available as an Open Access e-journal from 2016]
·
Southern
African journal of gynaecological oncology; South
African Society of Gynaecologic Oncology; (Medpharm Publications) – [available
as an Open Access e-journal from 2009 onwards]
·
Journal of
gynecologic oncology; Korean Society of Gynecologic Oncology,
issuing body – [available as an Open Access e-journal from 2011 onwards, and
as a NHS e-journal 2008 onwards.]
·
Gynecologic
oncology (Online); Society of Gynecologic Oncologists; (Elsevier)
– [available in print at the Health Library, Royal Stoke from 1996 to 1999, Keele
e-journal from 1995 onwards and UHNM e-journal 2007 onwards.]
·
International
journal of gynaecology and obstetrics; International Federation of
Gynecology and Obstetrics, issuing body; (Elsevier) – [available as a Keele
e-journal from 1997 onwards]
·
European
journal of obstetrics, gynecology, and reproductive biology (Online);
(Elsevier) – [available as a Keele e-journal from 1995 onwards, and UHNM
e-journal 2007 onwards]
N.B. NHS members
can obtain temporary Keele IT log-ins to view e-journals from the Keele IT
suite in the Health Library at Royal Stoke.
Access more journals via our Journals
webpage: http://www.keele.ac.uk/healthlibrary/find/journals/
·
“Ovarian cancer symptoms in
pre-clinical invasive epithelial ovarian cancer – An exploratory analysis
nested within the UK Collaborative Trial of Ovarian Cancer Screening (UKCTOCS)”; Dilley,
James; Gentry-Maharaj, Aleksandra; Ryan, Andy; et al; Gynecologic oncology,
2023-12, Vol.179, p.123-130; DOI: 10.1016/j.ygyno.2023.11.005
·
“Multicenter study of ovarian
cancer score for diagnosing ovarian cancer”; Wang, Haixia; Zhu,
Jianqing; Zou, Dongling; Rao, Qunxian; et al; Gynecologic oncology,
2025-02, Vol.193, p.58-64; DOI: 10.1016/j.ygyno.2024.12.017
·
“Fragmentomics
features of ovarian cancer”; Chao, Xiaopei; Kai, Zhentian; Wu, Huanwen; et
al; International journal of cancer, 2024-10, Vol.155 (7), p.1316-1326; DOI:
10.1002/ijc.34981
·
“Ovarian Cancer Risk Prediction - a Clinical Epidemiology
Perspective”; Wentzensen,
Nicolas; Ring, Kari; Erickson, Britt K; et al; American journal of
epidemiology, 2024-08; DOI: 10.1093/aje/kwae293
·
“Racial and ethnic differences in
epithelial ovarian cancer risk: an analysis from the Ovarian Cancer Association
Consortium”; Meagher,
Nicola S; White, Kami K; Wilkens, Lynne R; Bandera, Elisa V; et al; American
journal of epidemiology, 2024-09, Vol.193 (9), p.1242-1252; DOI: 10.1093/aje/kwae076
·
“Screening and prevention of ovarian
cancer”; Sideris,
Michail; Menon, Usha; Manchanda, Ranjit; Medical journal of Australia,
2024-03, Vol.220 (5), p.264-274; DOI: 10.5694/mja2.52227
·
“Promising new drugs and therapeutic approaches for
treatment of ovarian cancer-targeting the hallmarks of cancer”; Hillmann, Julia; Maass, Nicolai; et
al; BMC medicine, 2025-01, Vol.23 (1), p.10-30, Article 10; DOI: 10.1186/s12916-024-03826-w
·
“Immunotherapy in Recurrent Ovarian Cancer”; Chen, Keyao; Wang, Jingjing; Yang,
Meng; Deng, Shaoqiong; Sun, Li; Biomedicines, 2025-01, Vol.13 (1),
p.168; DOI: 10.3390/biomedicines13010168
·
“Living a Cancer Surveillance Life: A
Meta-Ethnographic Synthesis of Everyday Experiences and Ambivalences for Women
Living With Hereditary Risk of Breast and/or Ovarian Cancer.”; Gislinge JIP, Byrjalsen A, Naver KV, et
al.; Psycho-oncology.; 2024, Vol. 33 (12), e70054. DOI:
10.1002/pon.70054.
N.B. All the above articles are Open
Access so are available online to both Keele & NHS users.
PATIENT INFORMATION / PATIENT ADVICE:
·
NHS website:
o
Genetic Testing - https://www.nhs.uk/conditions/predictive-genetic-tests-cancer/
o
Ovarian Cancer - https://www.nhs.uk/conditions/ovarian-cancer/
·
Charities / Further information:
o Ovarian Cancer Action - https://ovarian.org.uk/
o Target Ovarian Cancer - https://targetovariancancer.org.uk/
o Ovacome Ovarian Cancer - https://www.ovacome.org.uk/
·
Clinical Key – Patient Education Leaflets [Available
to UHNM only with OpenAthens log-in]:
o
Ovarian Cancer - https://www.clinicalkey.com/#!/content/patient_handout/5-s2.0-pe_74cacda7-e5bf-47c1-b072-e3f82683f5a8
KnowledgeShare CURRENT AWARENESS:
KnowledgeShare
Evidence Updates is a personalised current awareness service which sends,
straight to your email inbox, new evidence on topics tailored to your
requirements and collated by Health Librarians. For more information, or to register for KnowledgeShare please go to https://www.keele.ac.uk/healthlibrary/find/currentawareness/.
NEJM Knowledge Plus Subscription Update
UHNM will not be renewing its subscription to NEJM Knowledge+ in the next financial year. However, your current login details should remain active
until 31st March 2025.
At this time, there is no digital replacement revision aid available. However, you can explore our library catalogue to search for exam revision books
Rare Disease Day
Rare Disease Day
28 February 2025
Rare Disease Day takes place every year on 28
February (or 29 February in leap years) – the rarest day of the year. It is a global movement aimed at working
towards equity in social opportunity, healthcare and access to diagnosis and
treatment for all those living with a rare disease. According to
rarediseaseday.org, a disease is classified as rare if it affects fewer than 1
in 2,000 people. There are estimated to
be over 300 million people worldwide living with a rare disease with 72% of
such diseases being genetic.
RELATED LIBRARY
RESOURCES
The Health Libraries,
both at the Royal Stoke and County Hospitals, offer numerous resources related
to this topic. In the lists below you’ll find a small selection of items from
our collection. To locate these items, simply go to our online catalogue or ask
at the counter. This
document covers the following resources – books, journals, journal articles and patient information.
·
Patient: the story of a rare illness; Wyatt, Ben; 2014 (Viking) – part of our Patient Voices Collection.
·
Genome Finland: From Rare Diseases to Data Economy; Ilpo, Helén; 2024 (Helsinki University Press) – [only available
online as an Open Access e-book]
·
Fast Facts: Acute Lymphoblastic Leukemia; Wrench, Bela R., author.; Austin, Michael J; Castleton, Anna Z; 2022
(S. Karger AG); 1st edition – [only available online as a Keele e-book]
·
Critical Issues in Head and Neck Oncology: Key Concepts from the Seventh
THNO Meeting; Vermorken, Jan B; Budach, Volker; et al; 2021
(Springer Nature); 1st edition – [only available online as an Open Access
e-book]
·
Fast Facts: Blastic Plasmacytoid Dendritic Cell Neoplasm: Shedding light
on a rare disease; Deconinck, Eric; 2021 (S. Karger); 1st edition
– [only available online as a Keele e-book]
·
New clinical genetics; Read, A. F;
Donnai, D; 2020 (Scion Publishing); 4th edition – [also available
online as a Keele e-book]
·
Essentials of medical genetics for nursing and health professionals: an
interprofessional approach; Gunder McClary,
Laura M; 2020 (Jones & Bartlett Learning)
·
Diagnosis and Treatment of
Rare Gynecologic Cancers; Fumovitz,
Michael; 2023 (Elsevier Inc) – [only
available as an e-book for UHNM users via Clinical Key with an OpenAthens
password]
·
Rare and Interstitial Lung
Diseases; Sorino, Claudio; 2025; (Elsevier Inc) - [only available as an e-book for UHNM users
via Clinical Key with an OpenAthens password]
JOURNALS
·
Therapeutic
advances in rare disease; (Sage) – [available as an Open Access
e-journal from 2020 onwards]
·
Journal of
rare diseases (Berlin, Germany); Egyptian Medical Association, sponsoring body;
(Springer) – [available as an Open Access e-journal from 2022 onwards]
·
Rare
(Amsterdam, Netherlands); Undiagnosed Diseases Network International,
issuing body; (Elsevier B.V.) – [available as an Open Access e-journal from
2023 onwards]
·
Orphanet
journal of rare diseases; (BioMed Central) – [available as an Open
Access e-journal from 2006 onwards]
·
Genes
& diseases; Chongqing yi ke da xue; (Chongqing Medical
University) – [available as an Open Access e-journal from 2014 onwards]
·
The
application of clinical genetics; National Library of New Zealand; (Dove Medical
Press) – [available as an Open Access e-journal from 2008 onwards]
Access more journals via our Journals
webpage: http://www.keele.ac.uk/healthlibrary/find/journals/
·
“Precision medicine in rare diseases: What is
next?”; Tesi, Bianca; Boileau, Catherine; Boycott, Kym M; et al; Journal
of internal medicine, 2023-10, Vol.294 (4), pp.397-412; DOI:
10.1111/joim.13655
·
“Operational description of
rare diseases: a reference to improve the recognition and visibility of rare
diseases”; Wang, Chiuhui Mary; Whiting, Amy Heagle; Rath, Ana; Anido, Roberta; et
al; Orphanet journal of rare diseases, 2024-09, Vol.19 (1), pp.334-6,
Article 334; DOI: 10.1186/s13023-024-03322-7
·
“Invisible patients in rare
diseases: parental experiences with the healthcare and social services for
children with rare diseases. A mixed method study”;
Domaradzki, Jan; Walkowiak, Dariusz; Scientific reports, 2024-06, Vol.14
(1), Article 14016; DOI: 10.1038/s41598-024-63962-4;
·
“Rare
disease 101: an online resource teaching on over 7000 rare diseases in one
short course”; Dunne, Thomas Frederick; Jeffries, Daniel; Mckay, Lucy; Orphanet
journal of rare diseases, 2024-07, Vol.19 (1), p.275-10, Article 275; DOI:
10.1186/s13023-024-03286-8
·
“Real-world evidence for
coverage determination of treatments for rare diseases”; Dayer,
Victoria W; Drummond, Michael F; Dabbous, Omar; Orphanet journal of rare
diseases, 2024-02, Vol.19 (1), Article 47, DOI: 10.1186/s13023-024-03041-z
·
“Leaving no patient behind!
Expert recommendation in the use of innovative technologies for diagnosing rare
diseases”; van Karnebeek, Clara D M; O'Donnell-Luria, Anne; Baynam, Gareth; et
al; Orphanet journal of rare diseases, 2024-09, Vol.19 (1), Article 357;
DOI: 10.1186/s13023-024-03361-0
·
“Carer reported experiences: Supporting someone
with a rare disease”; McMullan J, Crowe AL, Downes K, McAneney H,
McKnight AJ.. Health and Social Care in the Community. 2022, Vol. 30 (3),
pp.1097-1108. DOI: 10.1111/hsc.13336.
·
“Needs of informal caregivers
of people with a rare disease: a rapid review of the literature.”;
Mcmullan J.; Lohfeld L.; McKnight AJ.; BMJ Open, 2022, Vol. 12 (12),
Article e063263. DOI: 10.1136/bmjopen-2022-063263.
·
“Factors affecting overall
care experience for people living with rare conditions in the UK: exploratory
analysis of a quantitative patient experience survey.”; Jones
J.; Cruddas M.; Simpson A.; et al; Orphanet
journal of rare diseases, 2024, Vol. 19 (1), Article 77. DOI:
10.1186/s13023-024-03081-5.
N.B. All the above articles are Open
Access so are available online to both Keele & NHS users.
PATIENT INFORMATION / PATIENT ADVICE:
·
NHS website:
o
Genetic Testing - https://www.nhs.uk/conditions/genetic-and-genomic-testing/
o
Screening in newborns - https://www.nhs.uk/conditions/baby/newborn-screening/blood-spot-test/
·
NHS Inform (Scotland) – Rare Conditions https://www.nhsinform.scot/illnesses-and-conditions/rare-conditions/
·
Charities / Further information:
o Rare Disease Day - https://www.rarediseaseday.org/
·
Clinical Key – Patient Education Leaflets [Available
to UHNM only with OpenAthens log-in]:
o
Genetic counselling - https://www.clinicalkey.com/#!/content/patient_handout/5-s2.0-pe_3aab5e17-9061-4c2d-9a92-ae7f489ff7f7
KnowledgeShare CURRENT AWARENESS:
KnowledgeShare
Evidence Updates is a personalised current awareness service which sends,
straight to your email inbox, new evidence on topics tailored to your
requirements and collated by Health Librarians. For more information, or to register for KnowledgeShare please go to https://www.keele.ac.uk/healthlibrary/find/currentawareness/.
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