MS
Awareness Week 2023
24th
to 30th April 2023
According to the Multiple Sclerosis Trust, there are
an estimated 130,000 people in the UK currently diagnosed with Multiple
sclerosis (MS). As a disease of the central nervous system the condition causes
a wide variety of symptoms which affect the day-to-day lives of those living
with the illness; often having a detrimental affect on a person’s mental health
and general wellbeing. A recent survey carried out by the MS Trust found that
of over 2,000 people living with MS, 56% felt that their condition impacted
their mental health.
MS Awareness Week 2023 runs from 24th to 30th
April. This year, the two main MS charities in the UK, the MS Trust and the MS
Society, have teamed up with five other MS charities to focus on raising
awareness of the impact MS has on mental and emotional wellbeing.
RELATED LIBRARY RESOURCES
The Health Libraries, both at the Royal Stoke and
County Hospitals, offer numerous resources related to the subject of multiple
sclerosis. Whether you have MS, live with someone who does, research it, or
care for patients with the condition, there are numerous texts available to
assist you. In the lists below you’ll
find a small selection of items. To locate these items, simply go to our online
catalogue or ask at the counter.
This document covers the
following resources – books, journals, journal
articles and patient
information.
·
Multiple sclerosis / Scolding, Neil;
Wilkins, Alastair; 2012 (Oxford University Press)
·
Multiple sclerosis / Malik, Omar; Donnelly, Ann;
Barnett, Michael; 2014 (Health Press); 3rd edition – available online as both a
Keele and NHS (with OpenAthens log-in)
e-book
·
Atlas of clinical
neurology
/ Perkin, G. David; 2011 (Elsevier/Saunders); 3rd edition
·
Managing the symptoms
of multiple sclerosis / Schapiro, Randall T; 2007 (Demos Medical Pub); 5th ed
– Available online as both a Keele and NHS (with OpenAthens log-in)
e-book
·
Multiple sclerosis
information for health and social care professionals / Multiple Sclerosis
Trust; 2011 (MS
Trust); 4th edition
·
The unmapped mind: a
memoir of neurology, multiple sclerosis and learning how to live / Donlan, Christian;
2019 (Penguin Books) – from our Patient Voices Collection
·
My life with MS,
bipolar and brain injury: living in the moment / Bacchus, Charlie;
Beau, Marie; 2019 (Routledge) – from our Patient Voices Collection.
·
Multiple Sclerosis International, Hindawi Publishing
Corporation. (Available as both a Keele and NHS e-journal from 2010 onwards).
·
Multiple Sclerosis Journal – Experimental, translational
and clinical,
Sage Publications Ltd. (Available as a Keele and NHS e-journal from 2015
onwards).
·
Multiple Sclerosis and Related Disorders, Elsevier B.V.
(Available as a Keele and NHS e-journal from 2012 onwards).
·
Journal of Multiple Sclerosis Research, Multiple Sclerosis
Research Association. (Available as a Keele and NHS e-journal from 2021
onwards).
·
Neurobiology of Disease, Blackwell Science. (Available as a
Keele and NHS e-journal from 1994 onwards).
·
Neuropathology and Applied Neurobiology, British
Neuropathological Society, Blackwell Science. (Available as both a Keele and
NHS e-journal from 1997 onwards).
Access more journals via our Journals
webpage: http://www.keele.ac.uk/healthlibrary/find/journals/
·
Tindall, Tierney;
Topcu, Gogem; Thomas, Shirley; et al; “Developing a patient care pathway for
emotional support around the point of multiple sclerosis diagnosis: A
stakeholder engagement study”, Health expectations: an international journal
of public participation in health care and health policy, 2023, Vol.26 (2),
p.858-868, DOI: 10.1111/hex.13711. (Available via both Keele and NHS
e-journals).
·
Morris-Bankole,
Hannah ; Ho, Aileen.K; “Psychotherapy and professional psychological support in
multiple sclerosis: Uncovering patients’ patterns of access and preferences”; Multiple
sclerosis and related disorders, 2023, Vol.71, p.104562-104562; DOI:
10.1016/j.msard.2023.104562 (Available via Keele and NHS e-journals).
·
Qomi, M. et al., “The
effect of distance nurse-led fatigue management on fatigue, sleep quality, and
self-efficacy in patients with multiple sclerosis: a quasi-experimental study”,
BMC Neurology, 2023, Vol.23 (1), pp.
71. doi:10.1186/s12883-023-03115-8. (Available via Keele and NHS e-journals).
·
Tworek, Grace ; Thompson, Nicolas R. ; Kane, Alexa
; Sullivan, Amy B; “The Impact of Stigma on Perceived
Quality of Life and Experience of Anxiety and Depression in Individuals
Diagnosed With MS”; Multiple sclerosis and related disorders, 2023,
Vol.72, p.104591; DOI: 10.1016/j.msard.2023.104591 (Available via Keele and NHS
e-journals).
·
Chu, Nathan Y ; Watson, Kaitlyn E ; Al
Hamarneh, Yazid N ; Yushko, Lily ; Tsuyuki, Ross T ; Smyth, Penelope;
“Evaluating the impact of patient-reported outcome measures on depression and
anxiety levels in people with multiple sclerosis: a study protocol for a
randomized controlled trial”; BMC neurology, 2023, Vol.23 (1), p.53-53, DOI:
10.1186/s12883-023-03090-0 (Available via Keele and NHS e-journals).
·
Wang, Chao ; Zhou, Yulin ; Feinstein, Anthony, “Neuro-immune
crosstalk in depressive symptoms of multiple sclerosis”, Neurobiology of
disease, 2023, Vol.177, p.106005-106005, DOI: 10.1016/j.nbd.2023.106005
(Available via Keele & NHS e-journals).
·
Głąbska, D; Kołota, A; Lachowicz, K;
Skolmowska, et al; “Vitamin D Supplementation and Mental Health in Multiple
Sclerosis Patients: A Systematic Review”, Nutrients, 2021, Vol.13 (12),
p.4207, DOI: 10.3390/nu13124207 (Available via Keele & NHS e-journals).
N.B. NHS staff who are members of
the Health Library can request a temporary Keele username which allows access
to Keele e-books/journals from the Keele IT Suite in the Health Library within
the CEC at Royal Stoke.
PATIENT INFORMATION / PATIENT
ADVICE:
·
NHS website: https://www.nhs.uk/conditions/multiple-sclerosis/
·
MS Charities:
o
Multiple Sclerosis Trust: https://mstrust.org.uk/
o MS Society https://www.mssociety.org.uk/
o MS UK https://ms-uk.org/
o Overcoming MS https://overcomingms.org/
o Multiple Sclerosis National Therapy Centres https://www.msntc.org.uk/
o Shift.ms https://shift.ms/
o MS Together https://www.mstogether.org/
·
Clinical Key [UHNM Only]:
o Multiple Sclerosis
[patient education handout] https://www.clinicalkey.com/#!/content/patient_handout/5-s2.0-pe_7cc194fb-6b5b-42c5-a818-464782e79bdc
o Managing You Multiple
Sclerosis [patient education handout] https://www.clinicalkey.com/#!/content/patient_handout/5-s2.0-pe_Netter_2016_book036_handout340_en
KnowledgeShare CURRENT AWARENESS:
KnowledgeShare
Evidence Updates is a personalised current awareness service which sends,
straight to your email inbox, new evidence on topics tailored to your
requirements and collated by Health Librarians. For more information, or to register for
KnowledgeShare please go to https://www.keele.ac.uk/healthlibrary/find/currentawareness/.