News and information from the Health Library at County Hospital Stafford.

Ovarian Cancer Awareness Month

March 2025

According to the charity, Ovarian Cancer Action, approximately 7,500 women are diagnosed with ovarian cancer in the UK each year, with only 3 in 10 women living beyond 10 years after diagnosis. In light of this, the charity launched Ovarian Cancer Awareness Month, which takes place in March each year. The campaign aims to raise awareness of ovarian cancer symptoms and statistics.

RELATED LIBRARY RESOURCES 

The Health Libraries, both at the Royal Stoke and County Hospitals, offer numerous resources related to this topic. In the lists below you’ll find a small selection of items from our collection. To locate these items, simply go to our online catalogue or ask at the counter. This document covers the following resources – books, journals, journal articles and patient information.

BOOKS

· Clark’s Essential Guide to Mammography; Borrelli, Claire; Mercer, Claire; Whitley, A. Stewart; 2024 (CRC Press) – [only available as a Keele e-book]

· Oxford Handbook of Obstetrics and Gynaecology; Collins, Sally; 2023 (Oxford University Press) – [available to loan from the Health Library at County or available as an NHS e-book]

· Ovarian cancer: methods and protocols; Kreeger, Pamela K; 2022 (Springer US) – [only available as a Keele e-book]

· Tumor Angiogenesis Assays: Methods and Protocols; Ribatti, Domenico; Ribatti, Domenico; 2022 (Springer US); 2^nd edition – [only available as a Keele e-book]

· Histopathology Reporting: Guidelines for Surgical Cancer; Boyle, David P; Allen, Derek C; 2020 (Springer); 4^th edition

· Essential obstetrics and gynaecology; Symonds, Ian M; Arulkumaran, Sabaratnam; 2019 (Elsevier); 6^th edition

· Principles of Gynecologic Oncology Surgery; Ramirez, Pedro; 2025 (Elsevier) – [only available as an e-book for UHNM users via Clinical Key with an OpenAthens password]

· Diagnosis and Treatment of Rare Gynecologic Cancers; Frumovitz, Michael; 2023 (Elsevier) - [only available as an e-book for UHNM users via Clinical Key with an OpenAthens password]

JOURNALS

· Gynecologic oncology reports; (Elsevier) – [available as an Open Access e-journal from 2014 onwards]

· Journal of obstetrics, gynecology and cancer research JOGCR; (Tehran Farname Inc) – [available as an Open Access e-journal from 2016]

· Southern African journal of gynaecological oncology; South African Society of Gynaecologic Oncology; (Medpharm Publications) – [available as an Open Access e-journal from 2009 onwards]

· Journal of gynecologic oncology; Korean Society of Gynecologic Oncology, issuing body – [available as an Open Access e-journal from 2011 onwards, and as a NHS e-journal 2008 onwards.]

· Gynecologic oncology (Online); Society of Gynecologic Oncologists; (Elsevier) – [available in print at the Health Library, Royal Stoke from 1996 to 1999, Keele e-journal from 1995 onwards and UHNM e-journal 2007 onwards.]

· International journal of gynaecology and obstetrics; International Federation of Gynecology and Obstetrics, issuing body; (Elsevier) – [available as a Keele e-journal from 1997 onwards]

· European journal of obstetrics, gynecology, and reproductive biology (Online); (Elsevier) – [available as a Keele e-journal from 1995 onwards, and UHNM e-journal 2007 onwards]

N.B. NHS members can obtain temporary Keele IT log-ins to view e-journals from the Keele IT suite in the Health Library at Royal Stoke.

Access more journals via our Journals webpage: http://www.keele.ac.uk/healthlibrary/find/journals/ 

JOURNAL ARTICLES

· “Ovarian cancer symptoms in pre-clinical invasive epithelial ovarian cancer – An exploratory analysis nested within the UK Collaborative Trial of Ovarian Cancer Screening (UKCTOCS)”; Dilley, James; Gentry-Maharaj, Aleksandra; Ryan, Andy; et al; Gynecologic oncology, 2023-12, Vol.179, p.123-130; DOI: 10.1016/j.ygyno.2023.11.005

· “Multicenter study of ovarian cancer score for diagnosing ovarian cancer”; Wang, Haixia; Zhu, Jianqing; Zou, Dongling; Rao, Qunxian; et al; Gynecologic oncology, 2025-02, Vol.193, p.58-64; DOI: 10.1016/j.ygyno.2024.12.017

· “Fragmentomics features of ovarian cancer”; Chao, Xiaopei; Kai, Zhentian; Wu, Huanwen; et al; International journal of cancer, 2024-10, Vol.155 (7), p.1316-1326; DOI: 10.1002/ijc.34981

· “Ovarian Cancer Risk Prediction - a Clinical Epidemiology Perspective”; Wentzensen, Nicolas; Ring, Kari; Erickson, Britt K; et al; American journal of epidemiology, 2024-08; DOI: 10.1093/aje/kwae293

· “Racial and ethnic differences in epithelial ovarian cancer risk: an analysis from the Ovarian Cancer Association Consortium”; Meagher, Nicola S; White, Kami K; Wilkens, Lynne R; Bandera, Elisa V; et al; American journal of epidemiology, 2024-09, Vol.193 (9), p.1242-1252; DOI: 10.1093/aje/kwae076

· “Screening and prevention of ovarian cancer”; Sideris, Michail; Menon, Usha; Manchanda, Ranjit; Medical journal of Australia, 2024-03, Vol.220 (5), p.264-274; DOI: 10.5694/mja2.52227

· “Promising new drugs and therapeutic approaches for treatment of ovarian cancer-targeting the hallmarks of cancer”; Hillmann, Julia; Maass, Nicolai; et al; BMC medicine, 2025-01, Vol.23 (1), p.10-30, Article 10; DOI: 10.1186/s12916-024-03826-w

· “Immunotherapy in Recurrent Ovarian Cancer”; Chen, Keyao; Wang, Jingjing; Yang, Meng; Deng, Shaoqiong; Sun, Li; Biomedicines, 2025-01, Vol.13 (1), p.168; DOI: 10.3390/biomedicines13010168

· “Living a Cancer Surveillance Life: A Meta-Ethnographic Synthesis of Everyday Experiences and Ambivalences for Women Living With Hereditary Risk of Breast and/or Ovarian Cancer.”; Gislinge JIP, Byrjalsen A, Naver KV, et al.; Psycho-oncology.; 2024, Vol. 33 (12), e70054. DOI: 10.1002/pon.70054.

N.B. All the above articles are Open Access so are available online to both Keele & NHS users.

PATIENT INFORMATION / PATIENT ADVICE:

· NHS website:

o Genetic Testing - https://www.nhs.uk/conditions/predictive-genetic-tests-cancer/

o Ovarian Cancer - https://www.nhs.uk/conditions/ovarian-cancer/

· Charities / Further information:

o Ovarian Cancer Action - https://ovarian.org.uk/

o Target Ovarian Cancer - https://targetovariancancer.org.uk/

o Ovacome Ovarian Cancer - https://www.ovacome.org.uk/

· Clinical Key – Patient Education Leaflets [Available to UHNM only with OpenAthens log-in]:

o Ovarian Cancer - https://www.clinicalkey.com/#!/content/patient_handout/5-s2.0-pe_74cacda7-e5bf-47c1-b072-e3f82683f5a8

KnowledgeShare CURRENT AWARENESS:

KnowledgeShare Evidence Updates is a personalised current awareness service which sends, straight to your email inbox, new evidence on topics tailored to your requirements and collated by Health Librarians. For more information, or to register for KnowledgeShare please go to https://www.keele.ac.uk/healthlibrary/find/currentawareness/. 

NEJM Knowledge Plus Subscription Update

UHNM will not be renewing its subscription to NEJM Knowledge+ in the next financial year. However, your current login details should remain active until 31st March 2025.

At this time, there is no digital replacement revision aid available. However, you can explore our library catalogue to search for exam revision books

Rare Disease Day

Rare Disease Day

28 February 2025

Rare Disease Day takes place every year on 28 February (or 29 February in leap years) – the rarest day of the year. It is a global movement aimed at working towards equity in social opportunity, healthcare and access to diagnosis and treatment for all those living with a rare disease. According to rarediseaseday.org, a disease is classified as rare if it affects fewer than 1 in 2,000 people. There are estimated to be over 300 million people worldwide living with a rare disease with 72% of such diseases being genetic.

RELATED LIBRARY RESOURCES 

BOOKS

· Patient: the story of a rare illness; Wyatt, Ben; 2014 (Viking) – part of our Patient Voices Collection.

· Genome Finland: From Rare Diseases to Data Economy; Ilpo, Helén; 2024 (Helsinki University Press) – [only available online as an Open Access e-book]

· Fast Facts: Acute Lymphoblastic Leukemia; Wrench, Bela R., author.; Austin, Michael J; Castleton, Anna Z; 2022 (S. Karger AG); 1st edition – [only available online as a Keele e-book]

· Critical Issues in Head and Neck Oncology: Key Concepts from the Seventh THNO Meeting; Vermorken, Jan B; Budach, Volker; et al; 2021 (Springer Nature); 1st edition – [only available online as an Open Access e-book]

· Fast Facts: Blastic Plasmacytoid Dendritic Cell Neoplasm: Shedding light on a rare disease; Deconinck, Eric; 2021 (S. Karger); 1st edition – [only available online as a Keele e-book]

· New clinical genetics; Read, A. F; Donnai, D; 2020 (Scion Publishing); 4^th edition – [also available online as a Keele e-book]

· Essentials of medical genetics for nursing and health professionals: an interprofessional approach; Gunder McClary, Laura M; 2020 (Jones & Bartlett Learning)

· Diagnosis and Treatment of Rare Gynecologic Cancers; Fumovitz, Michael; 2023 (Elsevier Inc) – [only available as an e-book for UHNM users via Clinical Key with an OpenAthens password]

· Rare and Interstitial Lung Diseases; Sorino, Claudio; 2025; (Elsevier Inc) - [only available as an e-book for UHNM users via Clinical Key with an OpenAthens password]

JOURNALS

· Therapeutic advances in rare disease; (Sage) – [available as an Open Access e-journal from 2020 onwards]

· Journal of rare diseases (Berlin, Germany); Egyptian Medical Association, sponsoring body; (Springer) – [available as an Open Access e-journal from 2022 onwards]

· Rare (Amsterdam, Netherlands); Undiagnosed Diseases Network International, issuing body; (Elsevier B.V.) – [available as an Open Access e-journal from 2023 onwards]

· Orphanet journal of rare diseases; (BioMed Central) – [available as an Open Access e-journal from 2006 onwards]

· Genes & diseases; Chongqing yi ke da xue; (Chongqing Medical University) – [available as an Open Access e-journal from 2014 onwards]

· The application of clinical genetics; National Library of New Zealand; (Dove Medical Press) – [available as an Open Access e-journal from 2008 onwards]

Access more journals via our Journals webpage: http://www.keele.ac.uk/healthlibrary/find/journals/ 

JOURNAL ARTICLES

· “Precision medicine in rare diseases: What is next?”; Tesi, Bianca; Boileau, Catherine; Boycott, Kym M; et al; Journal of internal medicine, 2023-10, Vol.294 (4), pp.397-412; DOI: 10.1111/joim.13655

· “Operational description of rare diseases: a reference to improve the recognition and visibility of rare diseases”; Wang, Chiuhui Mary; Whiting, Amy Heagle; Rath, Ana; Anido, Roberta; et al; Orphanet journal of rare diseases, 2024-09, Vol.19 (1), pp.334-6, Article 334; DOI: 10.1186/s13023-024-03322-7

· “Invisible patients in rare diseases: parental experiences with the healthcare and social services for children with rare diseases. A mixed method study”; Domaradzki, Jan; Walkowiak, Dariusz; Scientific reports, 2024-06, Vol.14 (1), Article 14016; DOI: 10.1038/s41598-024-63962-4;

· “Rare disease 101: an online resource teaching on over 7000 rare diseases in one short course”; Dunne, Thomas Frederick; Jeffries, Daniel; Mckay, Lucy; Orphanet journal of rare diseases, 2024-07, Vol.19 (1), p.275-10, Article 275; DOI: 10.1186/s13023-024-03286-8

· “Real-world evidence for coverage determination of treatments for rare diseases”; Dayer, Victoria W; Drummond, Michael F; Dabbous, Omar; Orphanet journal of rare diseases, 2024-02, Vol.19 (1), Article 47, DOI: 10.1186/s13023-024-03041-z

· “Leaving no patient behind! Expert recommendation in the use of innovative technologies for diagnosing rare diseases”; van Karnebeek, Clara D M; O'Donnell-Luria, Anne; Baynam, Gareth; et al; Orphanet journal of rare diseases, 2024-09, Vol.19 (1), Article 357; DOI: 10.1186/s13023-024-03361-0

· “Carer reported experiences: Supporting someone with a rare disease”; McMullan J, Crowe AL, Downes K, McAneney H, McKnight AJ.. Health and Social Care in the Community. 2022, Vol. 30 (3), pp.1097-1108. DOI: 10.1111/hsc.13336.

· “Needs of informal caregivers of people with a rare disease: a rapid review of the literature.”; Mcmullan J.; Lohfeld L.; McKnight AJ.; BMJ Open, 2022, Vol. 12 (12), Article e063263. DOI: 10.1136/bmjopen-2022-063263.

· “Factors affecting overall care experience for people living with rare conditions in the UK: exploratory analysis of a quantitative patient experience survey.”; Jones J.; Cruddas M.; Simpson A.; et al; Orphanet journal of rare diseases, 2024, Vol. 19 (1), Article 77. DOI: 10.1186/s13023-024-03081-5.

N.B. All the above articles are Open Access so are available online to both Keele & NHS users.

PATIENT INFORMATION / PATIENT ADVICE:

· NHS website:

o Genetic Testing - https://www.nhs.uk/conditions/genetic-and-genomic-testing/

o Screening in newborns - https://www.nhs.uk/conditions/baby/newborn-screening/blood-spot-test/

· NHS Inform (Scotland) – Rare Conditions https://www.nhsinform.scot/illnesses-and-conditions/rare-conditions/

· Charities / Further information:

o Rare Disease Day - https://www.rarediseaseday.org/

· Clinical Key – Patient Education Leaflets [Available to UHNM only with OpenAthens log-in]:

o Genetic counselling - https://www.clinicalkey.com/#!/content/patient_handout/5-s2.0-pe_3aab5e17-9061-4c2d-9a92-ae7f489ff7f7

KnowledgeShare CURRENT AWARENESS:

Health Literacy

What is health literacy?

In England, more than 4 out of 10 adults (43%) cannot routinely understand health information because their literacy skills are not good enough. And more than 6 out of 10 adults (61%) can’t understand health information because their numeracy skills are too poor.

To communicate well, anyone working in health care must provide information that can be understood. This can be written or spoken. It includes information on accessing services as well as clear medical information. (Health Literacy Toolkit, 2023).

The health library offers a 1-hour training session, accredited by the Royal Society for Public Health UK (RSPH), that can be delivered face-2-face or virtually via Teams.

The aims of the session are:

To introduce you to the concept of health literacy.
To consider the impact low health literacy can have on your work, your patients, and the NHS.
To explore practical methods that can be used to help improve health literacy and the patient experience.

Session details:

Group options:

Virtual - This session can be delivered virtually (via Teams) for groups of 12 people or less. If you have a large team, we can schedule as many sessions as you need.

Classroom – This session can also be delivered face-to-face for groups of 25 people or less.

Individuals can also book onto virtual sessions – just send an email and ask for upcoming dates.

Contact: Debbie Wyatt by email to book a session for yourself or your team: debbie.wyatt@uhnm.nhs.uk

Some great informative titles on diversity and inclusion for LGBT+ History Month

How Can We Be Wrong?: A bio-fictional LGBTQIA+ memoir

Transgender Employees in the Workplace: A Guide for Employers

Counselling Skills for Working with Gender Diversity and Identity

Transgender Health: A Practitioner's Guide to Binary and Non-Binary Trans Patient Care

Can I tell you about gender diversity? A Guide for Friends, Family and Professionals

LGBTQ health research: theory, methods, practice

Trans and Non-binary Gender Healthcare for Psychiatrists, Psychologists, and Other Health Professionals

Clinician's guide to LGBTQIA+ care : cultural safety and social justice in primary, sexual and reproductive healthcare

Fast facts about LGBTQ+ care for nurses.

Library Search

You can also find some of our e-books alongside print copies in our library catalogue some are for Keele users only but others are available to NHS staff. Access the catalogue here: https://www.keele.ac.uk/healthlibrary/find/librarysearch/

Library Opening Hours

The library is accessible 24/7 to members who apply for extended hours access. Otherwise staff can access the library during PGMC opening hours Monday-Friday excluding Bank Holidays.

Library staff are increasingly working on an outreach basis and are able to come to visit/assist you and your team in your workplace if desired, please do not hesitate to contact us.

The physical library space in the chapel building is designed so that you can use it on a self-service basis but library staff are available should you need help either online or in person, Mon-Fri. If you are making a special journey to the library and know you will need help or advice it is recommended to contact us in advance to ensure staff are on hand. We welcome your enquiries.